Skip to main content

5 Year Seizure Free Fundraiser

On May 11, 2013 from 7-10 pm at TechLove in Nob Hill (3901 Central NE 87108) we will celebrate 5 years of seizure freedom for Lily Sophia with a fundraiser for the Hemispherectomy Foundation: http://hemifoundation.intuitwebsites.com/welcome.html

 Admission will be $5 single, $7 couple and includes Pizza from Little Cesar's and soda!

A Mary Kay representative will be on site to do hand softening demonstrations!

Each year the Hemi Foundation has given our family a grant to help cover travel for all four of us to go the Hemi conference. The first year we went to Disneyland and last year we went to Baltimore. During the conference, Lily gets to go to camp with other kids who have had the same surgery and Lola gets to go to camp with other siblings. As they get older, this will become more and more helpful for them. For Paul and I, it is an opportunity to be around the only other people in the world who have any grasp of what we have experienced.

In addition, the Hemi foundation provides support and networks to families who have just been referred for this surgery. The Halls created this organization because, like us, they were the only people they knew going through this experience and wanted to lighten the load for other families.

We will hold a raffle on May 11th at the event but will begin selling the tickets on Monday 04/08/13 and will continue to sell up until 9pm on May 11. The prizes are great! Keep checking back here for new items that are being added to the pool!

Tickets are $5 each or 5 for $20!

Haircut and Color by Molly at Brilliant Salon ($165 value)
http://www.brillianthairstudio.com

8-week music class for toddler and parent ($165 value)
with local Jazz legend Patty Stevens and Song Spiral
https://www.facebook.com/pages/Song-Spiral/237889449122

Pottery by Molly Barnett

2 bottles of Nautica men's cologne

and 3 gift baskets!

Food, Fun, and a Just Dance Tournament for Prizes!!!!

Lets raise some dough for a great cause!

Comments

Post a Comment

Popular posts from this blog

Mudd Volleyball

Every year for the past 17 years thousands of Albuquerque residents filed into the South Valley to stand knee high in muddy water and play volleyball. Teams come dressed in themes and there is a contest for 'Best Camp', 'Best Costumes', 'Best Fundraising', and of course 'Mudd Volleyball Champion'. All of the proceeds go to benefit the Carrie Tingley Hospital Foundation. I worked for a company a few years ago that was a sponsor so we had the VIP tent and everything was taken care of. All I had to do was show up and play. It was amazingly fun.    This was our first complete Mudd Volleyball experience. My husband and I had decided to buy a team because the registration is 100% tax deductible and as small business owners we had to increase our charitable giving for the tax incentive. The reason we chose this charity is for the fact that a few months prior, by the recommendation of our 4 year old's physical therapist, the Carrie Tingley Hospital Fo...
Post a Comment
Read more

Can't find gainful employment so I guess I will just...

I moved from a career in advertising and marketing to advocacy in 2009, after my first child was born with multiple disabilities. I worked for peanuts for much of that time, got a master's, part of a phd, published in prestigious journals, traveled the world, but could never convert all of my experience into a well paying job or really, the kind of respect in my field I had hoped for. So, in February 2018. I gave up. I removed myself from all policy and advocacy positions, took on some odd contracts, and mostly just committed to enjoying my newfound freedom. The internet is full of great ideas to pass your time. Time, combined with a degree in sculpture, and a very small budget, I have been able to do some fun stuff. I'm not sure if anyone will be interested in the things I am doing, but thought I'd put it out there, just in case there is another person like me, milling around the inter webs, looking for inspiration. <3 Let's get weird!!!
Post a Comment
Read more

It Should Get Easier

This was my second attempt to write a paper for the same social science journal.  The reviewers had been disturbed by my anger and felt that I wasn't giving the various healthcare providers the same empathy that I was demanding. This time i attempted to just describe a single day--an afternoon really--of care for my child and ALL of the thoughts, memories, experience that occurred during a three hour period. What I learned, unequivocally from this round of reviews, is that my voice has no place in that journal and that is okay with me. Lily and I arrived at the children's rehabilitation hospital at 1:15 PM on a hot July day. I had been on the phone for most of the day with the pharmacy, Lily's behavioral therapist, the United State’s Social Security Administration, the public school audiologist, and our insurance company. Lily had spent the morning at my mother’s house playing with her little sister and six girl cousins. I was refreshed from a long weekend for the Four...
1 comment
Read more