This was my second attempt to write a paper for the same social science journal. The reviewers had been disturbed by my anger and felt that I wasn't giving the various healthcare providers the same empathy that I was demanding. This time i attempted to just describe a single day--an afternoon really--of care for my child and ALL of the thoughts, memories, experience that occurred during a three hour period. What I learned, unequivocally from this round of reviews, is that my voice has no place in that journal and that is okay with me. Lily and I arrived at the children's rehabilitation hospital at 1:15 PM on a hot July day. I had been on the phone for most of the day with the pharmacy, Lily's behavioral therapist, the United State’s Social Security Administration, the public school audiologist, and our insurance company. Lily had spent the morning at my mother’s house playing with her little sister and six girl cousins. I was refreshed from a long weekend for the Four...
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