Lisa Rossignol

I don't know about you but I sometimes feel so frustrated with the choices of shoes, glasses, and adaptive accessories that are available in our medium sized metro city for my 5 year old with disabilities. If I can find what I need for her it is usually obscenely priced or distributed by some snotty salesperson or careless business owner that may ignore Lily or look at me like "why did you bring this kid here?" I finally got fed up. Here are some of the resources I have found, tested and recommend for internet shopping. Glasses:  Lily was first prescribed glasses, for strabismus (lazy eye), when she was one year old. We refereed to the optical shop at the pediatric ophthalmologist and we were told that our only option was a frame called Miraflex. We had medicaid at the time and Lily was under the age of three so the insurance company paid for the $150 frames and lenses. We had the choice between almost white pink, pink, or a little bit darker pink. Lily hated the glasse...

On May 11, 2013 from 7-10 pm at TechLove in Nob Hill (3901 Central NE 87108) we will celebrate 5 years of seizure freedom for Lily Sophia with a fundraiser for the Hemispherectomy Foundation: h ttp://hemifoundation.intuitwebsites.com/welcome.html Admission will be $5 single, $7 couple and includes Pizza from Little Cesar's and soda! A Mary Kay representative will be on site to do hand softening demonstrations! Each year the Hemi Foundation has given our family a grant to help cover travel for all four of us to go the Hemi conference. The first year we went to Disneyland and last year we went to Baltimore. During the conference, Lily gets to go to camp with other kids who have had the same surgery and Lola gets to go to camp with other siblings. As they get older, this will become more and more helpful for them. For Paul and I, it is an opportunity to be around the only other people in the world who have any grasp of what we have experienced. In addition, the Hemi foundati...